a reply to:
TheAMEDDDoc
Wow, i've had this almost 20 years and saw rheumatologists regularly for the first year, but that's by far the most insightful comments i've had. It
was never suggested to me that i seek an immunologist, despite them diagnosing the pain (mainly in my ribs, but also a foot) as an inflammatory
issue.
The NHS here wasn't interested in looking for the cause (a missing blood serum was all i got out of them), they just wanted to push ever increasing
strengths of NSAIDs, testosterone injections and finally a walking stick and methotrexate. I refused the last 2 and stopped all their meds and i got
80-90% better within a month and have remained that way since then.
At the risk of boring you i'll throw in my 2 pet theories for the cause: In '97 i had about half a dozen vaccines within a couple of weeks because i
was about to go backpacking around the world. Within a month my appendix popped (luckily just
before going to India). Then shortly after i got
dysentery while in India and later stung around my feet and torso by several sea urchins in Thailand. So my immune system got pretty battered. But it
was about 3 years before the inflammation first appeared in my ribs, so there's that gap which undermines this theory.
My second daft theory is that in '89/'90 at the end of my teens i got a post-Flu 'mystery condition' that had me bed bound for about 3-4 months. No
tests were done, since i was too weak to leave the house, but a visiting Dr
guessed it was bad pneumonia, maybe mild TB (however, i'd had a BCG
vaccine shortly after i was born - no idea why; wasn't customary).
Looking back now there's some similarities to what i read about coronavirus; it severely attacked the lungs and i had to constantly fight for breath
for a week or 2 at the peak (thought my number was up at some points and i think being a wee bit of an athlete at the time got me through it). I was
incredibly weak and tired and would imagine my O2 levels were extremely low.
About 10 years later i developed this inflammatory condition. Were the vaccines triggers for something left dormant by the virus? The 2 things are
most likely not connected, but can't help wondering if i had an early version of this virus and this latest incarnation brings about that inflammatory
response with greater speed and devastation.
Thought this when i read on ATS yesterday that the US Army are reluctant to recruit those that have had the virus (later changed to 'have been
hospitalised with the virus'). It got a few of people here wondering if the army know, or suspect long term effects! Could one of those effects be
seronegative inflammation?
In many these post viral conditions would make them unsuitable soldiers with symptoms falling under many disturbing umbrellas such as ME, Lyme disease
and arthritis, meaning down the road potentially lots of money needing to be spent on army pensions, or the like after they're demobbed on disability.
In short could some/many of us have been suffering the post viral effects of this virus' ancestor for decades. The mysterious modern malaise of
autoimmune conditions, such as the wide spread ME (which my brother has) could have a common root.
All
HIGHLY speculative and Occam's razor probably dictates than none of this is connected.
Can i ask what you meant by:
I would lean yes based on your description though and increased symptoms when sick because it could be a signalling rather than an
antibody issue with inflammation.
Sorry to abuse your time, but you shouldn't be so damned insightful