My tumour is now untreatable -- RIP our beloved friend: August 11, 2016 --

Correction of links

www.google.gr...://www.intechopen.com/download/pdf/26491&ved=0ahUKEwiE7o3t7r7MAhVMBBoKHRf7BKkQFggzMAc&usg=AFQj CNHF4nbB7sZn9KnztYZFmZLC5IdxrA&sig2=w_jF-Hc1bLWdAYbb3HjWGw

www.pbhrfindia.org...

a reply to: woodwardjnr

I am so deeply sorry you have to go through that! Nothing anyone can say that will help, but prayers being sent, in any case, and that can help. No apologies needed for coming in here and talking about it, either. If we can't support one another as people, the site wouldn't be nearly as good.

Talk when you need to, rant, cry on a virtual shoulder, whatever. Having people care is never a bad thing. Feel free to PM, too. Not here all the time, but will answer. Never a problem.

a reply to: woodwardjnr

I have trigeminal neuralgia. Aka suicide disease. I have a tegratol prescription but cbds keep me atypical & manageable.

Your story is heartbreaking..
All I can suggest is Rick Simpson Oil.

youtu.be...

a reply to: woodwardjnr

Not sure if you expect to live another 30 yrs or not,

but

you've made an impact greater than oh so many others.

Congrats

b

Thanks for sharing your story woodward, i just lost my grandma to brain cancer. It helped that she went with such dignity. She found a lot of strength in acceptance. I don't know you, but i hope you make the most of the time you have left. Eat all the unhealthy food you can get your hands on.

I usually never make any sense on ATS. Due to my star count you can conclude that for yourself. However... if ever you could use a Pinocchio... just let me know.

I wish you love and peace OP. Your time is not determined by a disease, but by your determination.

hi,

I strongly recommend reading Robert Monroe books, in my opinion he is closest to what is beyond this world... he is the one first used the term OBE (out of body experience)...

Eat all the unhealthy food you can get your hands on.

a reply to: mahatche
Now that's the advice I can follow, I'm just a bit off my food at the moment

a reply to: woodwardjnr

When my Dad was on a strict diet because of health problems he said, "Hell, if I'm gonna die, I'm gonna die happy." He ate what he wanted usually. He lived into his eighties. LOL

originally posted by: woodwardjnr
I made a thread about 2 years ago about giving up treatment for my brain tumour, well I stuck with it for another 18 months spending most of /015 in hospital. I had two more brain surgeries and a course of radiotherapy. I made it long enough to see my niece born, which was the happiest day of my life, she's a little stunner and brought so much joy to my family. However in April I started to grow a large lump on the side of my head it seems the tumour I had which was a glioblastoma has mutated into a glio sarcoma. Which is like the gbm but worse in that it can metastasise around the body, hence the lump on the head. I had it removed in April and it returned in 2 weeks. So I was back in hospital last week, but my surgeon said even if he got all of the tumour out there would always be a few cells left which would grow back in a few weeks, so he wanted to pass it back to oncology. Problem is it's such a rare tumour that there is no designated chemo. They usually treat it like the gbm that I've had since 2007. Now the chemo no longer works I've had it so many times. So I'm back home now, just trying to make sure I'm as pain free as possible. I haven't given up, but realise I've been lucky to survive a grade 4 brain tumour for so long, it was only a matter of time until the inevitable. It's located in the eloquent area of the brain which controls speech and motor function. I've already noticed a significant weakness in my hand and foot, but no other recogniseable symptoms. I've been in this situation a few times now including a brain hemorrhage in 2014. I've kind of got used to the disappointment and fear. I'm just making sure I'm in as little pain as possible and as comfortable as I can get. I've found my meditation has helped a lot over the years, but there's only so much it can help with. I've had so much support from members of ats. I won't name names you know who you are. It really has been quite touching, never thought I would have developed such close relationships via ats and Facebook messenger. I don't know how long I've got, but seeing as there's no treatment availability I don't think I'll have long. The tumour is so rare that it makes up a tiny proportion of brain tumours, so not much research has been done. It's in the brain so couldn't really spread to a worse region of the brain. I'm not in pain yet and I don't wNt to go to a hospice. So am going to try and manage pain best as I can through support from local hospice and local Drs who've said they will make sure I don't suffer any pain. It's so hard talkin about it, so I don't expect any one to know what to say. I find it hard enough talking to close friends and family. No words seem to come out or sound right. I will keep fighting to the bitter end and intend to meet my death in as concious a state as possible. You only get one opportunity to experience it. Whether that will be possible who knows. I'm gonna stay on ats while I still can, so sorry if I'm a bit narky with some people or don't take your threads as seriously as you want me too, but we are all a mixed bunch on ats going through our own personal struggles.

Look after your health and make the most of your lives while you can, follow your dreams, enjoy your families they will always be there for you and have proved to be the most important thing in my life. and don't let anyone hold you back. If you can walk and talk you can achieve anything you want. I could state more cliches, but I imagine I've used up my quota for ats. No need to respond I just wanted to get it off my chest, rather than derail others threads sorry lysergic.

Do not give up. CBD oil. Begin taking it now. Forget your doctor. I KNOW first hand experience this will kill tumors quickly. Please take it.

Wow, I just read through some other posts and although I know they mean well, I would strongly encourage you NOT to "accept" this or resign yourself to what we think is fate. You're here, on ATS, for a reason. Not just to find interesting things to read but you could very well find a cure.

There are two very strong possibilities for curing this and quickly:

CBD oil. Take as much as you can. It makes you sleepy but will not harm you. It is a fact that it cures cancer and destroys tumors. I know this from first hand experience.

Maple syrup and baking soda. Google the amount but I believe it is one teaspoon per day. The sugar is drawn to the cancer and the baking soda acts to destroy the tumor because the soda is alkaline, and cancer cannot survive in an alkaline environment.

a reply to: woodwardjnrIt's sad news, to hear but I think there's still plenty of hope if you believe and it seems like you do. The placebo effect is just another way of saying mind over matter and we've all heard stories about the power of the mind.

Some other natural cancer fighters to consider are:
Salvestrols
Paw Paw Cell-Reg and Essiac Tea and/or Jason Winter’s Tea
Curcumin and Ginger
Black Cumin Seed
Beta glucans
Vitamin D3
Vitamin C
l-Lysine and l-Proline combination
Green Tea
Triple Action Cruciferous Vegetable Extract
Barley Grass
Vitalzym
Wormwood (Artemisinin) and Iron
Modified Citrus Pectin
Chlorella

GENERAL WARNING: When using nutritional supplements, please consult with your physician if you are undergoing treatment for a medical condition or if you are pregnant or lactating.

Best Wishes and Good Luck!

I'm usually much more a lurker but wanted you to know you have touched many.

You have a beautiful spirit.

You will be in my thoughts & I am relying on a miracle to pass your way. Positive thoughts (and a hug) being sent to you through the cyber connection.


a reply to: woodwardjnr

originally posted by: reeferman
a reply to: woodwardjnr

I have trigeminal neuralgia. Aka suicide disease. I have a tegratol prescription but cbds keep me atypical & manageable.

Your story is heartbreaking..
All I can suggest is Rick Simpson Oil.

youtu.be...

I'm so very sorry. This lends credence to the fact that as we respond to faceless people on the internet, we have no idea what struggles the person behind the avatar endures. My best to you, and sincere hope for more effective treatments.
Peace.

man, this is a f---ed up situation, i've been there, but i was lucky to survive all these years. I had a tumor, i went through chemotherapy, they injected platinum to my bloodstream, and luckily i survived. So all i wanted to say is, enjoy your time bro, time is relative to the ammount of happiness you get. A minute can be eternal if you're suffering, but also a year can look like a second if you're happy. Keep the meditation going, that'll help for sure, i really wish i could help with something, but there's nothing i can do from my position, except sending you my best wishes and good thoughts.

Well since your death seems inevitable, try smoking some marijuana and see if it indeed does fight cancer as efficient as people say it is. Who cares if you have to get it illegally, it's life or death!

I'm new here so we don't know each other but I just want to wish you Godspeed my brother.

a reply to: woodwardjnr

I heard a snippet on Radio 4 this evening that said the NHS is about to authorise the administration of cannabis oil for life-threatening cancer. I only half-caught it and can't see any corroborating news links after a quick search.

It's not much by way of hope, I know. I thought I'd mention it anyway just in case it pans out and offers a palliative option.

originally posted by: woodwardjnr

Eat all the unhealthy food you can get your hands on.

a reply to: mahatche
Now that's the advice I can follow, I'm just a bit off my food at the moment

Just stopped by to check in and noticed this post.

It was only after my time had run out to do any edits on my other post that I'd failed to add what should have been a small explanation. Without it, it's hard to understand the context of what I meant.

The radiation treatment and what he went through later when the tumor metastasized down his spinal cord were part of the overall process, but his loss of taste was a result of the radiation treatment and nobody had thought to warn him of the likelihood that it would scorch his tongue and damage his ability to taste what he ate.

While I'm at it I want to mention something. No way do I want to hold out false hopes but, then again, this is a personal observation of the difference between a terrible prognosis from the "experts" and how life can defy professional opinions.

The lady (a dear friend of mine) that was out office manager at the little computer company I worked for in the late '80s had moved her mother into their home after the last diagnosis the doctors gave her mother. Her mom had a tumor on the left frontal lobe of brain (sorry, don't remember what type) that was malignant. She'd had radiation & chemo and they thought they'd got it all. Then a couple of years later, when she started having trouble with her vision, another exam showed that it was back and even after losing her left eye they told her it was inoperable and basically sent her home to die.

I first met Donna's mother about 14 years after she'd moved in with them. They had met a wonderful herbalist/dietician that created a protocol of specific fruit & vegetable juices along with herbal supplements allowing her to eat a healthy, normal diet and live a very happy life for 17 years after the "experts" sent her home to die.

Life has never been the exact same for two people. I miss the dry wit of Christopher Hitchens. At one of his debates that took place after he'd begun to show the ravages of his cancer, a well meaning moderator started by saying something to the effect of, "I'd be remiss, Christopher, if I didn't ask you first how you are doing." With his classic deadpan he replied, "Well..., I'm dying." After a perfectly timed pause for the uncomfortable laugh he added, "But then again, so are all of you."

For myself, I'll hold off on my good-bye. You may well outlive me.