My daughter has something wrong with her yet not even the doctors can find what it is at this stage.

Hi firstly sorry to hear about your daughter. Not sure if it's been mentioned but I would assume she's been tested for Ross river virus . I've had this, the rash, high temp and puffy eyes are classic symptoms. Tiredness & aching joints. I'm no doc but have been told it can lay dormant for a while. I'm also in northern Victoria and as you would know mozzies were horrible this year. Good luck

I hope your daughter will be fine, my cousins grandson had a viral meningitis form just a couple of weeks ago in this area. Although very sick, he is fine now. You could ask the authorities what kind of meningitis was suspected, antibiotics would most likely have been given anyway in the first instance, and you should ask about any tests that have been done, and if there are any results.

Sequence:

Daughters both have cold-like symptoms.
Patient develops sore throat.
Then develops odd behavior i.e staring

Sensitive to light.
More odd behavior i.e. walking, scratching.

Neck gland.
Rash.
Brain swollen.

Slow heart rate.

When the patient is suddenly confused with the story of a sore throat one suspects an infection resulting in brain inflammation or encephalitis which usually has a good outcome as it is usually due to a virus and the body`s immune system deals with it. Doctors usually treat with broad-spectrum antibiotics and anti-virals (aciclovir for the cold-sore virus herpes). Steroids reduce brain swelling.

The heart rate is altered by inflammation of the inner parts of the brain e.g. amygdala.

One other thought is Kawasaki disease which needs intravenous immunoglobulin therapy combined with aspirin.

Blood tests for virus antibodies take 2 weeks to show a rise in antibody levels. Most of the treatment is supportive i.e. IV fluids hygiene.

If in doubt Professor Mike South Professor of Paediatric Medicine in Melbourne is probably the Gregory House in your region.

www.expertwitness.co.uk...

You could make sure that your Doctors have discussed your daughter with Mike - a very approachable man.

p.s. these are some of the thoughts that may go through Mike`s mind:

Retropharyngeal abscess or cellulitis
Peritonsillar abscess
Orbital cellulitis
Cervical lymphadenitis or deep neck infection
Retropharyngeal phlegmon
Preseptal cellulitis

Adenovirus infection
Group A beta-hemolytic streptococcal infection
Drug hypersensitivity reaction
Enterovirus
Mononucleosis
Parvovirus B19 infection
Scarlet fever
Staphylococcal or streptococcal toxic shock syndrome
Systemic lupus erythematosus
Tick typhus
Viral meningitis
Yersinia pseudotuberculosis sepsis

Juvenile Rheumatoid Arthritis
Leptospirosis
Lyme Disease
Measles
Mercury Toxicity
Rheumatic Fever
Rocky Mountain Spotted Fever
Staphylococcal Scalded Skin Syndrome
Toxic Epidermal Necrolysis

Did she get bitten by a tick in the past.

Lyme disease may be a candidate.

EM is thought to occur in about 80% of infected patients.[12] Patients can also experience flu-like symptoms, such as headache, muscle soreness, fever, and malaise.[14] Lyme disease can progress to later stages even in patients who do not develop a rash.[15]

Various acute neurological problems, termed neuroborreliosis, appear in 10–15% of untreated patients.[14][18] These include facial palsy, which is the loss of muscle tone on one or both sides of the face, as well as MENINGITIS

Hope she gets well soon.

Hope your daughter gets better. My sister had the same symptoms you described.
It turned out she was allergic to anti biotics. The only thing that made her better were steroids.
She got out of hospital a few days ago. She was in for five weeks before they traced the reactions.
Someone wrote earlier "keep on top of the docs and nurses". I can't stress that enough! They often forget to check their own notes!!!!

reply to post by TraitorKiller


I am not a doctor, but I was thinking the same thing. Lyme or valley fever. Again, we are not doctors here, so none of us should be giving this OP any ideas to what to shoot for. I would just bring some of this up to the doctor as doctors see many patients and they are human and sometimes don't think about certain things.

Originally posted by TWISTEDWORDS
reply to post by TraitorKiller

 

I am not a doctor, but I was thinking the same thing. Lyme or valley fever. Again, we are not doctors here, so none of us should be giving this OP any ideas to what to shoot for. I would just bring some of this up to the doctor as doctors see many patients and they are human and sometimes don't think about certain things.

I disagree, there are certain things under the circumstances, that people should be asking other than just a diagnosis, and the OP does not give any clue to that at all.

reply to post by DarknStormy


Dear DarknStormy,

I am not a doctor, please advise yourself of that, but I am a transmitter/receiver of medical information from none other than Edgar Cayce who has heeded your call through me with a diagnosis as follows:

EDGAR CAYCE July 23, 2012 9PM EDST USA
"The meningitis diagnosis is incorrect. It is blood poisoning derived from a sharp pencil she used to dilate her navel because it itched. The child needs antibiotics of the kind they use for steroid users because she has them in her system. Please evacuate her arm with the rash or the arm closest to the rash. The rash is a sign she has irritated the nerve endings in the arm and she needs constant attention until the swelling goes down. Feed her antibiotics every four hours and let her sleep as long as she wants to. There is no cure for blood poisoning, only rest will heal the condition.

This is from Edgar Cayce which I transmitted through my keyboard. Thank you. Aronolac

I truly hope you daughter makes a full and speedy recovery...when you mentioned the swelling of the tissue of the spine and such my mind just jumped to something I had read about earlier. Not sure if it completely lines up with what you are noticing for the obvious reason of me not seeing it first had as you have. I would take a look into this just to be safe.

HIV-like virus

The incubation period of this new "HIV-like" pathogen is around 2 to 3 days (this is the time it takes for the first symptoms of this disease to appear after the initial exposure to the pathogen). Around 7 to 14 days after the initial exposure to the pathogen, many of the disease symptoms will have manifested.

This new "HIV-like" virus is probably not easily transmitted sexually, but is easily transmitted through kissing, which often takes place during sexual contact. This is why people who catch this virus mistakenly think they have caught a sexual disease. But in fact, once someone has caught this pathogen, it spreads to others, like friends and family, by ordinary household or workplace contact. So this pathogen is not to be considered a sexually transmitted pathogen, even though it is often caught from kissing during sex with a new partner (and is often caught from sex — even protected sex — with a prostitute, according to accounts from China).

This mystery HIV-like virus can cause the sudden onset of severe and quite terrible psychological symptoms, including: constant extreme anxiety states (generalized anxiety disorder), depression, anhedonia, suicidal ideation, poor memory and cognitive dysfunction. These mental state changes appear to be physically caused by the altered brain biochemistry and brain inflammation resulting from the infection with this virus.

I wish you, and your entire family the best of luck! you daughter will be in my thoughts.

Thanks a lot everyone for the advice, ideas and support. i briefly spoke to my ex about an hour ago and she has given me a brief update of what is going on.

She says that she looks as though she is recovering but the doctor at the hospital has been advised by someone in Melbourne to proceed with a Lumber injection (not sure if that is the right term). The doctor apparently tried everything to stop it from happening but it would be against protocol I guess. They are giving her another day to see whether she continues to improve. If they go ahead with the injection she will be in hospital for up to another 10 days give or take.

One of the things that we have noticed is something with one of her pupils. It doesn't seem right but maybe its just the fatigue or something. Today they have marked where they are going to give her the injection but again, we will not know until tommorow whether they will proceed with it.

They have found that there is something in her blood, but she didn't explain what it was or could be so maybe they are still unaware of what is causing the problems. I am heading up to the hospital soon and hopefully I can get more information which may shed some more light on what is happening.

The main thing is, she is getting better. I don't know what they are giving her etc at the moment, but by the sounds of it, things are on the up for now.

> edit< They are going to give the injection tommorow morning

Originally posted by smurfy
I hope your daughter will be fine, my cousins grandson had a viral meningitis form just a couple of weeks ago in this area. Although very sick, he is fine now. You could ask the authorities what kind of meningitis was suspected, antibiotics would most likely have been given anyway in the first instance, and you should ask about any tests that have been done, and if there are any results.

The first thing they asked is whether she had recently been overseas so whether they were just looking at a worst case scenario or something with the meningitis, I don't know. One thing that makes me feel it is under control or the doctors are on top of it is the fact they have not moved her down to the Royal childrens hospital. So at the moment it is a guessing game to what the actual issue is. But it won't be long before we find out.

Only a couple of weeks ago, a friends son had similar symptoms. He was taken to hospital and releases without a diagnosis.. Maybe it is a new strain of influenza or something.. Either way, it is nasty. The only problem I have with that though is that my older daughter has just got over a bug and is fine. She would possibly have similar symptoms...

I am very sorry your daughter is going through this right now. It is difficult having an ill child and is frightening for a parent no matter what your child's age is. There have been several excellent posts regarding what ailment your child may be suffering from and I am sure the support shown has been comforting. I am a practicing RN with 24 years of experience and would like to weigh in on your daughter's situation. It sounds as if you acted promptly and the Physicians are treating your daughter aggresively. Know that she is in good hands and that the treatment she is receiving is standard for a child with possible sepsis/meningitis/encephalitis. IV antibiotics, IV fluids, steroids and anti-pyretics will definitely treat most bacterial types of meningitis, sepsis or encephalitis. A less serious but still concerning is possibility is Scarlet fever which can make a child very, very sick. I contracted Scarlet Fever at the age of eight and had very similar symptoms to your child's. The high fever seen in Scarlet fever can cause hallucinations and the infectious process can cause the photophobia, achiness, swollen lymph nodes and generalized feeling of malaise mimicking neningitis. Again the treatment is similar as Scarlet is caused by strep. Hang in there. It sounds like your daughter is on the mend with the current treatment regimen and I pray that she will continue to improve!

I am not a doctor but had a wrong diagnoses: meningitis

They tried to give me a spinal tap when they thought I had meningitis, but I would not do it. The doctor told me if I did have meningitis I would be dead within 8 hours. I even had to sign a wavier saying that I would not get the spinal tap and that they would not be held responsible in the event I died (scare tactic).

Considering how many hours it has been, I feel this is all wrong for your daughter; if she indeed had meningitis she would be getting much worse!!! I later found out that I had to much stress and the muscles had tightened around my upper back causing my spin and neck to hurt. Also, I found out that doctors give spinal taps when it is NOT necessary (from my sister who is a nurse). Not to mention it is extremely painful. That should be a very last resort if at all.
***I would read up on that before I consented.

They should have gotten some clues from her blood work.
Has she had any vaccinations or went swimming in open waters like a lake?
Has she been checked for blood poison?

reply to post by DarknStormy
Could she possibly inhaled some kind of toxic chemical or vapor? Hence the burning and stinging eyes.

reply to post by DarknStormy

I have not read all the posts on this but if I was you I would do some quick research about " colloidal silver " and how it could possibly be very helpful to you if whatever is causing this is a virus or a bacteria !!!!!!!!

Been lurking for months-- logged in just for your daughter's sake.

1. Rash could be side-effect of strong antibiotic.

2. Check out Fifths Disease-- it's viral, symptoms line up, except the rash starting on her chest instead of face. Did her cheeks get rosy-red? That's the facial 'rash' but looks more like sunburn.

Fifths Disease

Other symptoms that sometimes occur with fifth disease include swollen glands, red eyes, sore throat, diarrhea, and rarely, rashes that look like blisters or bruises.

I only add this b/c it would be a shame for her to get a spinal tap for no good reason. Also, Fifths is not dangerous to children and subsides on its own. (It is dangerous for a pregnant woman to be around a child with Fifths. Could harm the fetus.)

I just wanted to say I hope your daughter makes a full recovery very soon. It's so hard to see your kids sick and suffering, You just want to make it all go away.

reply to post by DarknStormy


The poster who mentions the "greg house" of your region likely has the best info.

Otherwise the symptoms do look a lot like what the doctors are saying.

There are two forms of menegitis, one is bacteria, the other viral, and they
do behave differently.

I believe one does not kill you in 8 hours...

I don't know what it might be, but this will help the immune system, in any event. (That could make things worse, in some cases, I'm sure; so, don't trust me.)

www.abovetopsecret.com...

The recipe is very simple. I have been using this stuff, and my stamina is 2.5 times what it used to be. I used to struggle to run 2 miles. Now, I can run 5.

It's a bit involved the first time you make it. For simplicity and quick recovery, you might just buy the pre-made stuff. It's sold on amazon. 30 day supply for $30, so it's a bit pricy. Cheaper to make it yourself, but that takes time.

If you have questions, feel free to ask.

I am no docture,
but to me it sounds like some kind of reaction to some thing.
drink only battle water. and look at dieat.

my first thought is the brain.
have they don a scann of the brain?

good luck.