Chronic Fatigue Syndrome and the Scandal of Medical Ignorance

a reply to: Dr X

I was similar having a severe virus last October that put me in bed for 10 days. I was originally treated as post viral fatigue disorder (PVFD) for 6 weeks and then the problems started from there. According to my GP at the time I went from having PVFD to having nothing as she said PVFD only last 6 weeks. My symptoms did not go away after 6 weeks but according to her there was nothing wrong with me. I cannot fathom any logic in what she said.

originally posted by: Snoopy1978
I see some armchair doctors here, who constantly denounce ADD/ADHD as a fake condition, claiming fibromyalgia/cfs is as real as it gets. Guess it's only real when it affects YOU personally isnt it? Such ignorant, narrow-minded arrogance ffs!

I agree with you entirely. I am an RN and prior to being ill I had never come into contact with anyone with ME and always thought of it as something psychological and attention seeking. How wrong i was!

originally posted by: kosmicjack
a reply to: thedeadtruth

What pisses me off is that the dismissive attitude of the medical community leaves it wide open for people who are suffering to be taken advantage of by charlatans.

There has been a lot of bad reports about a medical treatment called The Lightning Process. Some swear that they have been completely cured by this process although there is an argument that those cured did not infact have CFS/ME.

a reply to: earthblaze

Flagged for a well written, informative post. Keep up the good work!

That being said, I am sorry you are in this predicament, as I am as well. But you also sound like you suffer from fibromyalgia, and a blood test has come out for that. That could help your claim.

Many of us consider FMS and CFS to be the same thing, really.

a reply to: jtma508

I had lymes 6 years ago. Did a course of antibiotics and then started testing negative and was considered cured. But it all went downhill from there.

People who felt they were still suffereing from lymes, like myself, were poo pooed by the medical community.


Come to find out there are other co infections with lymes that they can't even test for yet. Also, a recent study done on a monkey found that you can have lymes, but still test negative, even after prolonged ab treatment.

a reply to: nixie_nox

In the UK it seems that they go on the dominant symptom. If it is fatigue you have CFS, if it is pain you have FMS. Like you mention many have both. Pain was an issue but I have been taking gabapentin which has really helped. What is the blood test you mention for FMS?

originally posted by: Stormdancer777
a reply to: an0nThinker

I was this high energy athletic person until it hit me, it started with the fatigue, heart palpitations, vertigo, panic attacks, now I have Fibromyalgia and joint pain, and the brain fog is excruciating, the older I get with this on top of age is a nightmare.

I can see the possibility of the brain inflammation

Was you tested for Lyme disease because it is the exact same symptoms. there was times i was unable to lift my arms at one point I would just be unable to move at all so weak.

I actually was able to control a lot of symptoms after my Daughter gave me astragalus and eventually I tried the sea salt cure, it was scary but I never had pain at the original bite again and the pain in all my joints went away, I feel pretty normal most of the time maybe I am cured.

Many people never know they have been bitten at all.

a reply to: rickymouse

What you have explained make a lot of sense. I wouldn't say a change in food but rather an operation and medication several years ago which I still take me be a factor. I was really ill with reflux oesophagitis and developed Barrett's Oesophagus despite high doses of PPIs. Basically my lower oesophageal sphincter stopped working I ended up having a nissen fundoplication (where they wrap the top part of the stomach around the oesophagus and tie it to reinforce the sphincter.

I still have to take omeprazole. I know that it neutralizes gastric acid which the body uses to kill bacteria and also help in digesting food. The trouble is if I don't take PPIs the acid is horrendous and a nissen fundoplication creates a one way flow (so I cannot burp or vomit). I have never felt 100% well after having this operation and would say that I had pre CFS symptoms since then. I had alarm bells with B12 but the level came back normal. i think in the US they use pantoprazole which I was told should be taken for a maximum of 15 weeks. I have been omeprazole for 3 years. Since having CSF I have doubled the dose as I take ibuprofen.

I am going to try taking a gut motility med (motilium) to see if will help me come off the PPIs. I have read that Coxsackie B virus has been isolated in some CFS patients which is an enterovirus. I have not been tested for this.

a reply to: earthblaze

If you have naturally high stomach acid, more salt would not be good. When they stretched your stomach up, they probably messed up the upper lobe which creates chemistry to help process B12. People who have bariatric surgery take B12 pills most times. B12 shots or pills are used for people who had cancer surgery of the esophagus because they stretch the stomach up to attach it after removing the bad part.

The event you talk about is probably what started this off. It made it harder for the body to correctly take nutrients out of food and within a period of time the body gets deficient in things. Some deficiencies are quick and some are long forming. Your levels of B12 in the blood can be good, and still you can be deficient, the body will canibalize it from muscles and stuff it deems as not important as surviving. The heart needs a constant supply, more than the muscles do so importance in keeping it circulating in the blood to supply the heart is what is done.

Sublingual methycobalamin chewed or sucked on works good to stop this. So does a B12 shot. Like I said, just because blood levels are ok means nothing, I don't know how you could test for this.

a reply to: rickymouse

Thanks. I think i will try the sublingual B12 if I can source it in the UK.

a reply to: earthblaze

It's actually quite common. It does not need the enzymes produced in the top of the stomach to work. It doesn't give you the rush of energy that the Cyanocobalamin does, in fact it is good to take in the evening.

Funny how your nutritionist is telling you about the same thing I am. Oh that is right, medical workers in the UK aren't payed more if they keep you coming back. Better health care. They don't have to push pharmaceuticals I suppose.

Did they ever find the cause of what originally caused that valve to get burnt out? Fluoride can do that, do you drink a lot of tea? I know, I am profiling because you live in the UK and tea is the drink of choice for many people there. I heard they also have good local beers in the pubs there too.

originally posted by: Stormdancer777
I can relate I have been like this since 1981, been a lot worse lately.

Try this...
NaturalNews) There are many theories on how an individual should eat, and many diets have been created as a result of these beliefs. Whether a person eats vegetarian, vegan, Paleo or intuitively, it is a very personal decision based on experience and individual needs. However, if someone prefers a more scientific approach, perhaps they should consider the potential merits of the blood type diet.



Blood Type O

The type O diet focuses on lean, organic meats, vegetables and fruits and avoids wheat, corn, oats and dairy, which can be triggers for digestive and health issues in type Os. Also, type Os should avoid caffeine and alcohol. Caffeine can be particularly harmful because of its tendency to raise adrenaline and noradrenaline, which are already high for type Os.

Type Os seem to have a higher need than other blood types for healthy fats. They tend to thrive on raw butter, coconut oil, cod liver oil, flaxseed oil, pumpkin seed oil and extra-virgin olive oils.

Type Os tend to have sluggish thyroids, so it is advised to not eat members of the Brassica genus, such as cabbage, Brussels sprouts, cauliflower and mustard greens, because they suppress the thyroid. However, if these vegetables are steamed or cultured, they appear to be permissible.


Blood Type A

Type As flourish on a vegetarian diet due to the fact that they have an inadequate amount of stomach acid even from birth and do not digest animal protein or fats very well. If a type A is accustomed to eating meat, they will find that they have more energy once they eliminate them from their diet.

It is particularly important for sensitive type As to eat their foods in as natural a state as possible: pure, fresh and organic. This is a critical dietary adjustment for the sensitive immune system of type As. It will help charge their immune system and potentially short-circuit the development of life-threatening diseases.


Blood Type B

For type Bs, the biggest foods to avoid are corn, wheat, rye, buckwheat, lentils, tomatoes, peanuts and sesame seeds. Each of these foods affect the efficiency of their metabolic process, resulting in fatigue, fluid retention and hypoglycemia -- a severe drop in blood sugar after eating a meal. When they eliminate these foods and begin eating a diet that is right for their type, blood sugar levels should remain normal after meals.

Type Bs should also avoid pork and chicken. These foods form a dangerous lectin that attacks your bloodstream. Opt for wild game, seafood, lamb, venison and beef on occasion. Type Bs can also enjoy a wide variety of fruits and vegetables, and healthy fats such as olive oil, flax oil, ghee and almonds. Sunflower seeds are on the avoid list.

Type Bs fare better than all the blood types when it comes to dairy foods. However, it's important to focus on quality and moderation.


Blood Type AB

Type AB reflects the mixed inheritance of their A and B genes. They have low stomach acid, but also have type Bs adaptation to meats. Therefore, they lack enough stomach acid to metabolize them efficiently and the meat they eat tends to get stored as fat.

Type ABs should avoid caffeine and alcohol, especially when they are in stressful situations. Type ABs should focus on foods such as tofu, seafood, dairy and green vegetables. Avoid all smoked or cured meats. These foods can cause stomach cancer in people with low levels of stomach acid. There is a wide variety of seafood that is good for type ABs, and it is an excellent source of protein. Some dairy is also beneficial for type ABs -- especially cultured dairy such as yogurt and kefir.

Learn more: www.naturalnews.com...

originally posted by: Unity_99

originally posted by: jrod
There can be many causes of CFS, this I am certain.

Depression can cause it to, I know from first hand experience.

I think its the chronic fatigue causing the depression because your metabolism slows right down, and it affects the brain functions. So for example, I went from being very good in english, writing in the local paper for my class, having the vice principal telling me he expected a book out of me before I was 40, proofing my dad's papers as he was a teacher and he would rely on my spelling, to having the entire structure area go out, so I have to edit my posts over and over, and drop words, letter go backwards, and then can't fold clothes or sort things without panic setting in.

Chronic fatigue is a physical condition, and causes other things to occur that can lead to biochemical changes, that can lead to depression.

Cognitive symptoms have to be present before a diagnosis of CFS/ME is given. I only get brain fog when severely fatigued (I get word blocks and wrong words coming out both vocally and when typing). My short term memory gets shot as well and I have difficulty concentrating. Noise (sensory) overload is also a problem. If the tv is on or more than one person talking I can't take in information. very frustrating!

a reply to: tony9802

Hi. Thanks for your reply. I have looked at some of the info you have provided and although it is interesting (I love conspiracy stuff) I am not convinced this sort of technology exists. Even if it did I doubt I am important enough to warrant this type of attention. I am only a RN and have been unable to work since this all started last year.

a reply to: rickymouse

I have sourced high potency SL B12 1000mcg and also high potency magnesium citrate 400mg.
Also ordered 6 strain probiotics but will take a fluconazole three day course to kill candida.
Going to do a 3 day fast next week prior to doing a ketogenic diet for 3 weeks then onto a paleo diet.
Plan is to lose 75lb in 6 months and reverse metabolic syndrome, fatty liver disease, hypertension and high triglycerides which I have.

It will be interesting to see if this has any affect on the CSF.

The surgeon who did the operation told me that it was probably an autoimmune cause and mentioned CREST Syndrome (part of the scleroderma spectrum).

Thanks for all your advice rickymouse.

Just wondered if you have heard of Schuessler Cell Salts

A lot of great information in this thread. I can't help but notice that this one compliments this CFE thread:

www.abovetopsecret.com...

The Fred protocol may be a direction you want to take depending on your genetic results.

Well of course I have a hate on for MSG after my own recent experiences, and it has also been associated with CFS, and with fybromyalgia, and for a while a few years back, about once a month I'd be in bed for 24 hours or so with pains all over my body that a friend who did have fibromyalgia said sounded like what he put up with most days of his life. I can't imagine living with that every day. And of course autism has been 'cured' in some people within a couple of days by eliminating MSG. It could well be that there are so many attacks on our bodies from so many different directions that it is a combination of effects, but MSG seems to be right up there as a root cause for many ailments.
Excitotoxins & Food in Fibromyalgia & Chronic Fatigue Syndrome
chronicfatigue.about.com...

I am bookmarking this thread.... I am having symptoms that suggest Chronic Fatigue as well as Fibromyalgia , but I am too scared to accept that it is something like that yet. I am still working on tweeking diet and trying different activities to make it better- I hate the idea that I might have something that is so untreatable.

My husband works in the medical world and tells me that doctors even wave certain patients off between themselves as being "Fibros" , meaning basically, without any hope of a clear diagnosis or treatment. "Don't bother".

It all started after I started working in a hospital, and there were two women before me who came down with these symptoms in the past at this job, and had to leave, but are referred to vaguely as if they were just hypochondriacs or something.

I am getting used to constant pain and fatigue at some level, I adapt as it gets worse, and say nothing now. But sometimes I can't sleep at night, and sometimes I run to the bathroom to cry. I pray that it will just get better and I won't end up with something so hopeless!

My thoughts and prayers go out to those who are already at that point.

a reply to: earthblaze
Listening to everyone, I count myself very lucky to have a doctor that believed more in Chronic Fatigue than I did. To be honest, I just recently had to come to the realization that something was wrong, though I was told this since 2002.
I felt I was humoring this doctor with his "Ebstein Barr" and Mycoplasma malarky because He could prescribe with antibiotics that would help.
It keeps coming back though. I keep pushing myself when I'm tired. That could be part of the problem.
At least this doctor I go to has economy in mind, he's never prescribed anything ridiculously expensive.
He feels it's a chronic case of Ebstein Barr, and the level of mycoplasmas in the system, that somehow I can't find off, drains the system. I just can't seem to shake it permanently though.

originally posted by: v1rtu0s0
A lot of great information in this thread. I can't help but notice that this one compliments this CFE thread:

www.abovetopsecret.com...

The Fred protocol may be a direction you want to take depending on your genetic results.

Very interesting. Thank you for the link.