Psoriasis Blues

Sorry to hear about your mother Val, My heart goes out to her. Mine is only pretty mild(it was a lot worse till I started with the calcipotriol).

reply to post by uk today

Apologies first of all to the mod----sorry about the caps,I did,nt realise-won,t happen again!I would like to thank everyone so far for their help.It has been so reassuring to hear from others that are also suffering from this awful thing.I am going to try the tea leaf oil and the tanning bed to start with and your advice on diet was very informative.Bless you all and if I can get rid of it I will let you know what worked.I did,nt expect so many replies on this so THANK YOU.

reply to post by uk today

I meant tea tree oil-oops it is late here in the uk!Time for bed methinks.

reply to post by uk today


I suffered for years with constant outbreaks on my elbows. On a trip to Europe, I met a remarkable person who told me of a cure that was well known in his home village in Italy. He personally took me to the chemist where he bought the remedy, plain sea salt & cotton balls.

Needless to say I was skeptical. I did as he said and wet the cotton and liberally applied sea salt to it. I then pressed it against the affected area and kept it tight against the skin for 30 mins to 1hr each night. The first week the areas were very red but not sore. I continued and at the end of the second week the areas had healed to half their original size. At the end of the 3 months they were completely gone and have not returned in over 10 years. I tried numerous prescription creams and oils and this is the only thing that worked. It was a Godsend for me and I hope it will be for you also.....

I use to have severe psoriasis of the scalp, from 13 until present, I just recently in the past 3-4 months have been able to not worry about it. I still have dandruff, but it's on par with gelling your hair.

Nizoral will help, also, the psoriasis shampoos with tar in them work exponentially good.

As anonymous said, tea tree oil.

I know I am saying this at risk of sounding like another 'hippy', but you may also look into Hemp Seed Oil. You can order it from online sources (for us in the U.S., we have to get it shipped from Canada... stupid drug wars!). I have heard many claims of it helping out with skin conditions, and I think scoriosis is one of them. I may be off a bit, thus why I said YOU should look into it. It may be something that you just aren't comfortable using (hey... some people are just brainwashed that way... like christians who won't use Proctor and Gamble products still). I have talked to one lady in person who said she used it on her stretch marks and it worked MUCH better than Vita E, and that she actually found a skin ointment that was a HSO base with other ingredients like Aloe. She said her friend (sister maybe?) used it after having her kid (C-sect) and it actually prevented alot of scarring. The HSO is apparently good on cuts and scrapes because it is natural antibiotic (not biotic... but something like that)

Anyways, I'm babbling. At least check into it, and if you get a bottle and it doesn't work, you have a super tasty oil for your salads! (seriously... it has kind of a nutty taste to it compared to other oils... and it has omega3's and lots of other goodies!)

reply to post by uk today

Now that you've heard all the snake oil BS and the I'm sorries. You want a cure? Google MMS. Use it as a topical and drink it. Read the book first. I can not stress this enough. Read the book first.
You should also get some magnesium oxide.

Get away from all that Nazi medical experiments. Your not a lab rat.

Best wishes.

reply to post by Valhall


Valhall, you do realize that PUVA runs the risk of a 2.5 increase in the likelihood of carcinoma of the skin?

Hi All

Lots of great tips here, thanks! My husband has a severe case and his dermatologist prescribed Humira shots. Most insurance won't cover them ($1500 per shot) but Abbot Labs has a foundation that will cover them if you can't). He was on the shots for three months and it was three quarters cleared up, but then his liver count went up (a side effect) and he had to stop. This stuff was amazing and I hope Abbott Labs works some more on it to get rid of the side effects. Oh, and it's also great for Arthritis (did I spell that right?), anyhow amazing stuff.

In the meantime I'm gonna try Anonymous's suggestion of using the seasalt every night. It's about the only one we haven't tried, fingers crossed.

Thanks y'all,

STM

Originally posted by TheColdDragon
reply to post by Valhall

 

Valhall, you do realize that PUVA runs the risk of a 2.5 increase in the likelihood of carcinoma of the skin?

Yeah - I understand the risks involved in any increased UV exposure. But I'm not sure it is as high as you've just stated since in PUVA you're limiting your exposure to the UVA spectrum. Ideally you'd limit it just to UVA (black light), but those beds aren't readily available in rural areas like where I live and are not affordable to the average person like myself. A tanning bed restricts to UVA/UVB. I think the key is to minimize the amount of time to keep the plaques under control. In other words, when you're clear stop until you have begun to show some significant reoccurrence.

And then lastly - it's pretty important to not go lay out in the sun if you're doing anything that increases your psoralen intake. Because then you're increasing your risks of exposure to UVC...which is the biggest concern in skin cancer.

I weighed the pros and cons and I personally believe, for me, the pros outweigh the potential risks.

P.S. In addition, this is why I'm growing my own fig tree so I can make a tincture. Then I don't have to take in a systemic dose of psoralen, but apply it only to the areas that need more UV exposure.

[edit on 2-9-2009 by Valhall]

You could try immune suppressive herbs (ginger, devil's claw are examples). B12 en folic acid are also immune suppressants. Of course discuss this with your doctor because herbs are not innocent and can quite interreact with medicine (for example bleeding in some cases).

The thing is, try to become your own healer. And inform yourself as much as possible. Also listen to your intuition.

I also saw on tv recently a show about psoriasis and they mentioned a new allopathic cure. I can't quite recall what it was, think a medicine.

I myself have an ailment, which the doctors could not identify, but after a lot of research I am confident it is an immune disease. I experiment on myself with supplements Good luck!

One treatment that worked wonders for me was Enbrel. (etanercept). It is a weekly injection and I saw a 95% reduction in affected areas on my skin. The biggest problem with Enbrel, and the reason why most doctors won't tell you about it, is it costs about $1200 a month (4 injections, 300 bucks a pop). If your doctor does approve it though, you should be able to get it. Especially in the UK.

Good luck.

I have had psoriasis on my scalp for several years as a child growing up. Itchy to the point I had to let my hair grow because if I cut it short you could see the build-ups on my scalps and the blood from when I would scratch it. I had used this shampoo called " Denorex ". It wasn't like the new one's out today, I remember using this stuff and it BURNT my scalp - I had to leave it on for 5 mins each shower. The psoriasis on my scalp finally cleared up before the bottle was empty. How ever, after a BMX accident, scares on my legs healed into psoriasis. My right left, ankle to knee was FULL of psoriasis. As a boy back then, I didn't care and just went on with my day - until it started to develop on my ball sack. Once it got there, I hit depression, didn't want to go out, didn't want anyone to know I had psoriasis, I would fake being sick to not go to school. I had tried 100's of cream's, every time I saw the doctor I would get a new cream. Finally I was fed up with this, felt like a scam to me, swipe my health card n get money on top of the prescription you get money - WTF? right? I then met a girl, we started dating, her mom worked as a receptionist at a local clinic. One day, a salesmen came in to try and sell them psoriasis cream's and they were interested - before the salesmen left he said " If you have a severe case you know of, we will give him a test tube for free before you start prescribing the medication ". Her mom thought of me, brought me in for assesment and sure enough i walked out with the cream. It was worked like a MIRACLE - im talking 4 weeks of applying this to the affected area and no more psoriasis for me, comes back midly in the winter time but nothing a tanning bed can't fix. If interested, the cream is called "Dovobet". Hopefully it can help more then just me. Mind you, 200$ CND a tube is pricy but worth it for the self-esteem.

Just my 2 cents
siLo

I have mild psoriasis and psoritic arthritis. MILD. That's my caveat here.

Bath with borax to cut down the opportunistic infections that worsen it.

I use Emu Oil, Seabuckthorn oil and Mimosa Teniflora salve. All help and help heal.

Dr.Prickart's copper peptides Bio Heal also helps. (I have no affliation, and do not know him. I just use some of his products.)

Consuming Omega 7 Fatty Acid can help (you can find this in emu oil and seabuckthorn oil).

I take cod liver oil (vitamin a&d). More than the RDA. I also try to get more sun.

Often people use UVB treatment. Red Laser Light (630nm) has had some success, though in the clinical trials they usually use an injection or a topical solution that increases the intensity of the treatment.

Here is a company that you can buy a pretty good quality red light that produces the 630nm. (again, not affliated and don't know these people. I was looking into options for staph infections a few years ago.)

www.intelligentacnetreatment.com...

I have had great success completely curing this with the method described by Edgar Cayce. Its a called a violet ray generator. I did one spot according to the doctor for 6 years. Then a spot with the generator. It was gone in 2 weeks, with no scarring and good smooth skin restored. The doctors side....nothing but a loss of close to 1000 dollars over 6 years. Then the doctor had the guts to tell me to stop immediately. I told him I hoped other suckers like me would wise up so he could wait tables for a living.

reply to post by Anonymous ATS

This banana skin remedy sounds really interesting,will definately try this so thanks for that.I'm heading to the shops tomorrow to get a big bunch and also some tea tree oil.If these d'ont work I will try some of the other ideas.With so many things to go at ,for the first time in quarter of a century I may finally be able to wear short sleeves.That would feel better than winning a million pounds on the lottery after all these summers of misery.Bless you allxx

reply to post by uk today


I had a condition very similar to yours and it was related to another condition called "celiac" this is the condition related to intolerance to glueten witch is part of most grains we americans eat most. it is more and more common because of our ways of eating witch constitute mostly of process foods. most doctors do not test for this condition usuallly. one of the ways to know if it is this that you have is if your rashes are symetrical, meaning if you have it on one elbow you would also or might have it on the other as well. you can treat it with hydrocortizone cream. if the itch gets unbearable try taking a boiling hot shower and you will notice that the itch will go away for an hour or two(this activates endorphins wich calms the itch) if i were you i would get checked for "CELIAC"
en.wikipedia.org...

[edit on 11-3-2009 by accuroman]

I really had to ad a bit more on this subject because i really think what you have sounds a lot like d.h. my mom, brother , one of my aunts and myself have it. it took several visits and tests from several doctors to figure this out because of all the different symptoms you could also get from it. beside hydrocortizone cream or ointment you could also use fish oils. here is a youtube that you might want to see.
www.youtube.com...

mometasone furoate 1 mg/g
I think it was called Elocon
Horrible stuff
Anyway, one afternoon my ex put it on and it was like she was replacing psor affected skin with new. Lots of warnings with it.







[edit on 11-3-2009 by undermind]