HI, EXCUSE THE ALL-CAPS, IT'S EASIER ON MY HANDS.
I FOUND THIS SITE WHEN I WORD-SEARCHED 'PORPHYRIA', WHICH I
HAVE BEEN DIAGNOSED WITH.
IT IS ALSO CALLED 'THE VAMPIRE DISEASE'.
IT IS BELIEVED THAT THE MYTH OF VAMPIRES STARTED WITH THE
MISCONCEPTION OF PORPHYCICS: UNABLE TO GO OUT INTO SUNLIGHT
OR ONE BURNS; UNABLE TO EAT OR SMELL THE FUMES OF GARLIC,
BECAUSE THE SULPHITES IN IT CAUSES ONE TO BURN;
PALE; ANEMIC; RECEDING GUMS THAT MAKE THE EYE TEETH LOOK LIKE FANGS;
KINDA 'CRAZY-ACTIN'; VERY ATUNE TO THINGS TO THE POINT OF BEING
ALMOST LIKE SOME KIND OF MIND-READER; MYSTIC IN THEIR STRANGE MYSTERY. AS THE DISEASE PROGRESSES AND THE KIDNEYS AND LIVER SLOWLY START TO SHUT DOWN,
ONE'S EYES CAN ACTUALLY LOOK YELLOW AND VERY BLOODSHOT.
MOST PORPHYRICS CAN BE TRACED BACK TO A LINEAGE OF GENES, MOSTLY FROM CERTAIN ROYAL LINEAGE (THUS THE 'COUNT' LINK), USUALLY FROM A DUTCH-MIGRATION
TO SOUTH AFRICA, AND ALSO OF SLAVIK (CZECH, ROMANIAN, YUGOSLAVIAN, TRANSYLVANIAN) DESCENT.
VLAD THE IMPALER FROM BUCAREST, ROMANIA (WHERE MY GRANDMOTHER
IS FROM) WAS COUNT DRACULA. MY GRANDMOTHER HAS STORIES
OF HIM FROM HER VILLAGE. 'DRACUL' (SHE PRONOUNCES IT 'DRRRRAK-YOOL')
MEANS 'DEVIL'. 'DUTE DE DRACUL' (PRONOUNCED 'DOOT DEE DRRRAK-YOOL')
MEANS 'GO TO HELL', OR AS GRANDMA USED TO SAY: GO TO THE DEVIL.
(SHE WOULD SAY IT, "GO TOOOO DEEEE DEVIL!")
I AM LOOKING, ACTUALLY, FOR ANYONE ON THIS BOARD WHO MIGHT KNOW ANYTHING MORE ABOUT THE ACTUAL HEREDITARY ENZYME DISEASE PORHYRIA. I HAVE VARIEGATE
COPROPORPHYRIA. LATELY THE ATTACKS HAVE BEEN BAD (BLISTERING SKIN, EVEN WHEN I MAKE A RUN FOR IT FROM BUILDING TO THE SHADE OF MY CAR). IT HAS NOW
REACHED THE POINT WHERE I CANNOT HAVE MY SKIN EXPOSED TO THE U.V. SUNLIGHT AT ALL, WITHOUT CAUSING SEVERE BURNING AND SEIZURE-LIKE PAIN. ALSO, I AM
SO ANEMIC, ALL I CRAVE IS NEAR-RAW RED-MEAT (THE BLOODIER THE BETTER), AS IT HAS THE MOST IRON CONTENT. MY DOCTOR HAS ME ON A TRIPLE DOSE OF IRON TO
COMBAT THE ANEMIA, BUT 'ONCE A MONTH' (USUALLY WITH THE FULL MOON), I AM SO PALE AND WEAK I CAN HARDLY FUNCTION.
PORPHYRICS LIFE-EXPECTANCY IS ABOUT 43-63 YEARS OLD. GRANDMA DIED AT 51, FROM KIDNEY SHUTDOWN (UREMIA). OTHER SYMPTOMS INCLUDE COLITIS (WHICH MY
SISTER HAS); MISCARRIAGES (WHICH WE BOTH HAVE HAD); AND A VERY STRICT AND LIMITED DIET IN ORDER TO PREVENT PAINFUL ATTACKS.
THE PORPHYRICS ORGANS, ONCE THEY DIE, TEND TO PREVERVE WELL, SO CHANCES ARE, IF THEY WERE DUG UP (EXUMED), THEY WOULD LOOK VERY MUCH LIKE THEY WERE
STILL VERY MUCH ALIVE...NOT DECOMPOSED. THIS WOULD HAVE PROBABLY ALSO LED PEOPLE TO THINK THEM 'UNDEAD'.
SAINTS WERE SUPPOSEDLY PORPHYRICS, WHICH IS WHY THEY, TOO, NEVER SEEMED TO 'DECOMPOSE'.
BECAUSE OF THIS WARPED AND HORRID LIFESTYLE, I HAVE LIMITED FRIENDSHIPS (NEXT TO NONE), AND WOULD ALSO LIKE TO NETWORK ON HERE WITH SOME SANE
INTELLIGENT FOLKS, NOT GOTHIC VAMPIRE-WANNA-BEES.
I HOPE THAT DOESN'T SOUND CRUEL OR HARSH. IT IS REALLY NO FUN BEING A REAL VAMPIRE. I DON'T WEAR BLACK, DON'T WEAR CAPES, DON'T SPEAK WITH A
TRANSYLVANIA ACCENT NOR SLEEP IN A COFFIN. I'M JUST A GIRL WHO USED TO LOVE THE SUN WHEN I WAS A KID AND NOW I CAN'T BE IN IT, AND I CRAVE RED MEAT
AND AM PALE AND WEAK ALOT. I ALSO FEAR SOMETIMES FOR MY SANITY, AS ONE OF THE SYMPTOMS IS SCHITZOPHRENIA-LIKE SYMPTOMS, MAINLY DUE TO THE SLOW LACK
OF OXYGEN DISTRIBUTION TO THE BRAIN, DUE TO THE OVERLOAD OF PORPHYRINS IN THE BLOOD STREAM.
I HOPE IT'S ALRIGHT TO USE MY REAL NAME,
PLEASE EMAIL ME AT MY EMAIL ADDRESS,
[email protected]
SINCERELY,
JULIE ST.JOHN
DEKALB, IL. U.S.A.