Ice Bucket Challenge funds help scientists discover gene responsible for ALS

The University of Massachusetts Medical School's Project MinE recently discovered the gene that is responsible for ALS. Project MinE scientists were able to research this gene with help from the ALS Association, which donated $1 million from the Ice Bucket Challenge.

The identified gene is NEK1, which its variants could provide clues to understanding and potentially treating familial and sporadic ALS.

"The ALS Ice Bucket Challenge enabled us to secure funding from new sources in new parts of the world," Bernard Muller, founder of Project MinE and ALS patient, said in a statement. "This transatlantic collaboration supports our global gene hunt to identify the genetic drivers of ALS."

www.nydailynews.com...

Awesome that this silly thing actually did something good, And here me thinking all those people were just ridiculous, good for you silly people

Future generations may no suffer from this horrible disease, one can only hope.

a reply to: Indigent

People can make a difference even if in silly ways. Fun is an excellent way to raise money.

a reply to: Kali74

It looked more like attention craving people to me, that dint even knew what they did it for, but i guess i was wrong

hurray for humanity...

a reply to: Indigent

I'm sure some of it was, it's how some humans are but ultimately it did good so if some egos got superficially boosted along the way so be it. Maybe, if those superficial people know that what they did actually did make a difference it might sway them into being less superficial and more altruistic.

Thanks for sharing this, today is going to be challenging for me, this is a good note to walk out the door with.

Man this made me happy.

All those people talking smack about how stupid it was, and they were tired of seeing it. Close your eyes and donate then. Help or hush

-Alee

a reply to: Indigent

Hey, this is good news considering this:

ALS challenge is a satanic ritual.

originally posted by: Indigent
a reply to: Kali74

It looked more like attention craving people to me, that dint even knew what they did it for, but i guess i was wrong

hurray for humanity...

how can people not knew something?

not knew?

I dont know...

a reply to: savemebarry

i don't speak english so you comment is meh

try harder

a reply to: AugustusMasonicus

originally posted by: AugustusMasonicus

originally posted by: Hiasyouwant
I bet the masons here on this site could tell us about this ritual?

Sure, I would be happy to explain this Satanic ritual to you.

Satan loves wet t-shirt contests. A lot.

That's how cruel god is, he put him in a place where the water evaporates before reaching the shirt

a reply to: Indigent

That thread was fun and I am glad Satan was able to help in the search for a cure for ALS.

Thanks for the update!

Good stuff! Progress is needed.

And the ice bucket challenge wasn't silly. It was brilliant. Dumping ice over yourselves allows you to feel for a moment what this disease feels like. People with ALS become frozen inside a body while the mind fully remains with all senses intact. You become frozen and locked inside. It is the perfect symbolism for ALS/Lou Gehrig's/Motor Neuron Disease.

So very thankful progress is being made!

originally posted by: Indigent
a reply to: Kali74

It looked more like attention craving people to me
.

It was. This was a "challenge" that consisted of pouring water on your head. The next "challenge" will be putting a hose down your pants and turning it on.

Honestly, they could have given money for anything. Trying to connect it to this seems like a stretch to me. However, it's obviously good to see progress in curing illnesses like this.

a reply to: TheBulk

How is it a stretch? See my post above. The relation to ice is quite obvious. Additionally, people with ALS have increased symptoms in the cold.

The notion that there isn't a correlation is a disservice to those facing this disease, their families and friends.

originally posted by: DancedWithWolves
a reply to: TheBulk

How is it a stretch? See my post above. The relation to ice is quite obvious. Additionally, people with ALS have increased symptoms in the cold.

The notion that there isn't a correlation is a disservice to those facing this disease, their families and friends.

Calling the pouring of water on your head a "challenge" is a disservice to our society and humanity in general. You're raising generations of special snow flakes who wont be able to function at near the level their ancestors did.

a reply to: Indigent

I did the challenge, and also remember the derision and mockery. But several people nominated in my area ponied up cash for the cause rather than dump ice water over each other, and it's awesome to see that it really did make a difference.

The purpose was to show people for one moment what it can feel like to have ALS. While I'm sure it was an attention-getting thing for some, the people I know did it for the right reason in the spirit of helping and understanding, and this is really great to hear. Thanks for posting.

originally posted by: TheBulk

originally posted by: DancedWithWolves
a reply to: TheBulk

How is it a stretch? See my post above. The relation to ice is quite obvious. Additionally, people with ALS have increased symptoms in the cold.

The notion that there isn't a correlation is a disservice to those facing this disease, their families and friends.

Calling the pouring of water on your head a "challenge" is a disservice to our society and humanity in general. You're raising generations of special snow flakes who wont be able to function at near the level their ancestors did.

Forget I asked, your reply makes zero sense. Carry on.

And thanks to those who did take the challenge and also donated. Good stuff.

a reply to: Indigent

Finally something good on here. And just imagine from something so far fetched as raising money by doing a silly thing.
Just goes to show that there is always hope and the answers come from unexpected ideas. Keep on living laughing and loving the world. That is and always has been the only answer.

a reply to: Indigent

Does anyone know of an alternative medicine treatment of ALS that shows any effectiveness at all?

I have a friend who has it.

a reply to: BO XIAN

Yes, cannabis. It's not legally available to all patients.

Based on some exciting new anecdotal evidence, the use of cannabis oil to treat ALS may actually prolong the life of the patient in addition to relieving many of the disease's devastating day-to-day symptoms.

Cannabis has long been known as a viable treatment option to relieve symptoms of ALS, which was outlined in this handy chart created by the American Journal of Hospice and Palliative Medicine, but the most astonishing results have come from several ALS sufferers who have managed to slow the progression of the disease through regular, controlled doses of cannabis oil.

Much more info in the full story. Healing prayers for your friend.

story

a reply to: DancedWithWolves

Thanks.

Will forward on.