Multiple Sclerosis information thread.

Why not use this thread to post usefull information on the difficult condition called Multiple Sclerosis.

Excellent idea for a thread. My mom has had it for 30 yrs. Horrible disease no doubt, effects the entire body, to slowly waste away and lose functions one by one along with the effects on the brain. I wouldn't wish it on my worst enemy.

Treatments for MS have come a long way over the past 10 years with disease modifying drugs such as tysabri able to substantially slow down the progression of the symptoms.

I've recently heard about stem cell treatments having great success so the future is looking bright

This is one of the connective tissue diseases I've been researching, as we supposedly have a high rate of sufferers in Southeast KY/Southwest VA/East TN.

I have a theory that MS could be a misdiagnosis of beryllium sensitivity. Our area has the highest concentrations of beryllium next to Utah. I don't know if it could be being separated out during froth flotation at the coal mines, or if it is simply being carried by coal dust. Either way, I think there is a possibility that sarcoid, MS, schleroderma and a host of other diseases could actually be beryllium sensitivity.

Or radioactivity. I have not explored that avenue as much, but it is certainly possible. In fact, one of my friends who suffers from MS was having problems with her teeth- two separate dentists told her they thought she had been exposed to a "massive dose of radiation".

France realized a growing rate of MS cases soon after a Hepatitis B vaccine compaign.

Immediately following this revelation, vaccination rates plummeted in France and suspicions about how the hepatitis B vaccine might be triggering MS began to emerge. One hypothesis suggested that a protein in the vaccine might be very similar to a protein naturally found in myelin, the protective coating around nerve fibers that is attacked by the immune system in MS sufferers.
Link

Clearly vaccines saves lives but we cannot discount negative affects it may have on our immune system.

It would be helpful if we could avoid anecdotal claims and stories from anti or even pseudoscientific websites.

I've heard that marijuana is a very good medicine for MS patients. Has this been proven or disproven, and under what circumstances is it used? I know three people with MS, with varying symptoms at varying times.

Here's an article on WebMD on MS and marijuana:

www.webmd.com...

a reply to: Aleister

It can certainly help alleviate some symptoms and increase things like your appetite

originally posted by: jaynkeel
Excellent idea for a thread. My mom has had it for 30 yrs. Horrible disease no doubt, effects the entire body, to slowly waste away and lose functions one by one along with the effects on the brain. I wouldn't wish it on my worst enemy.

Was going to write the same thing.

originally posted by: Aleister
I've heard that marijuana is a very good medicine for MS patients. Has this been proven or disproven, and under what circumstances is it used? I know three people with MS, with varying symptoms at varying times.

Here's an article on WebMD on MS and marijuana:

www.webmd.com...

A very good friend of mine has MS and although it helps the pain the "side effects" are too much for him, he struggles as it is without bieng high as well.

He did notice a big difference when he started eating a far more healthy diet, within a week of dropping the junk and eating huge ammounts of greens and raw food you could see a difference in him.

There has been a lot of speculation about possible links between aspertame and ms. It can't hurt to take a deeper look at one's consumption of diet soda, if this is a challenge for you...

originally posted by: Prezbo369
It would be helpful if we could avoid anecdotal claims and stories from anti or even pseudoscientific websites.

Please clarify that comment. Did you read the source paper cited on natural news or not? It would be helpful to advance the discussion not to promote ignorance. Are you the arbiter of information?

Why don't you break down the paper and add some value? At least you could have mustered a "correlation isn't causation".

I found this lady a while ago when looking to help my friend with the disease.

I do not know much about her but worth a look if only for the purpose of debunking.

Dr. Terry Wahls

A short Ted talk on how as a doctor she manages the disease.

The most annoying problems associated with MS is not the principal condiion (MS) but the multiples sides problems like urinary infection, reduced mobility, reduction of blood circulation, wound bed, ...

This is not MS that will ultimatly kill you, but one of the secondary problems.

a reply to: dffrntkndfnml

After a cursory check, aspartame was introduced as a soda sweetener in the early '80s.

MS has been around for a very long time.

One thing we found usefull for the chronic pain was a low carb died.

originally posted by: glend
France realized a growing rate of MS cases soon after a Hepatitis B vaccine compaign.

Immediately following this revelation, vaccination rates plummeted in France and suspicions about how the hepatitis B vaccine might be triggering MS began to emerge. One hypothesis suggested that a protein in the vaccine might be very similar to a protein naturally found in myelin, the protective coating around nerve fibers that is attacked by the immune system in MS sufferers.
Link

Clearly vaccines saves lives but we cannot discount negative affects it may have on our immune system.

Interesting story. The vaccine can't be the sole cause of course, but asymmetrically hacking the native immune system with adjuvants and foreign substances most certainly can cause reduction in selectivity -- which means the immune system attacks the bodies own proteins. A spectrum of ugly outcomes, including "MS like symptoms".

a reply to: InverseLookingGlass

I read the complete article all the way up to the recommendation from the author to not vaccinated babies with a certain vaccination, at which point I discarded the claims being made.

This type of anti scientific rhetoric has no place in a discussion like this imo, as it only serves to promote ignorance when scientific advances into the condition have advanced and improved the lives of a vast number of sufferers.

Correlation isn't causation. In my opinion, it's more like it aspartame could be one piece of the puzzle. I have my own ideas about the rise of higher incidents of disease, since lifestyles have changed in our more modern era. The thing is, that others have noted improvements with symptoms after removing this from their diet, though it's one of those changes that could benefit anyone.

Not to be a gluten free basher but...... I have read that a gluten free diet helps. A friend of mine who is gluten free went through a few months drinking beer which is not gluten free, after a few months she went to the doctor with what the doctor diagnosed as begining of ms, her symptons went away when stopped drinking beer.