Love makes miracles, My son was born with Congenital Myotonic M.D. the doctors, who were "pediatric specialist" told my wife and I that our son was
going to die with in a week. His illness causes severely low muscle tone, it makes it difficult breath because chest muscles are not strong enough to
expand lungs, facial muscles are not strong enough to close his mouth to suck or eat.
As a result of his illness the doctors did not want to feed him, they wanted to basically let him starve to death. We were asked to sign D.N.R.
orders, and asked if we would like to donate any organs. They said if he manages to live he will need a trachea to breath and a G tube to be feed, he
will never walk or talk, and will be severely retarded for life. We were devastated! cried all night.
I don't know how to explain this but the next morning, I woke up with the most overwhelming feeling that he would be fine, I went to the hospital
every day with a smile on my face! I was approached by a doctor who asked to talk to us. They felt that we were in shock and do not accept what they
were telling us. I said to the doctor, "with all due respect, I want you to do every thing you can possibly do for him, stop telling me what he can't
do and start telling me what he can do! If you have nothing positive to say to us about his progress then keep it to your self because we don't want
to here it"!
My son, is now 11ys old! he is in the 5th grade, he loves pizza, and the same food you and I love, He plays soccer and needs no assistance walking. He
can read a grade level above his level, music plays a huge part in his life, and people gravitate to him. He is still a little slow, but that is ok!
He truly displays unconditional love for everyone he meets, and I think that is why everyone wants to be around him. I think of him as a reincarnated
wise old sole!
Doctors tend to use the only tool that they have in some situations, that is the text book norm. Most doctors, don;t like to provide false hope, but
in some situations hope is all you have and doctors or anyone else should never take that from you! I don't feel things would have turned out the way
they did if our son "picked up" that we had given up hope on him.
edit on 2/16/11 by xyankee because: (no reason given)