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Originally posted by uncob
I have known I had myeloma for nearly 5 years now. I have had many treatments, including an autologous stem cell transplant. It's essential that your mom sees an MM specialist, not just any hem/onc. There are mailing lists where you can connect with lots of MM patients and caregivers, too: web.mmsupport.net...
www.acor.org.... You can learn from the experiences of others. Getting the right doctor can increase survival, believe me. There are just some out there that don't have enough experience with this rare cancer.
You can read about my own experience with this cancer at www.myelomablog.com. I started it in April, 2003, about 4 months after I found out I had MM.